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order helvetica, cure sans-serif;">In the act of feeding for children with ataxia telangiectasia can arise three types of problems:

 

Promote autonomy at table


Pince-a-couverts-VitilycareIt is the role of the occupational therapist to provide specific tips and tools to retain the autonomy for self feeding. For example

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If you are not handyman, you can use the tools offered by some manufacturers.

 

Eating with swallowing problems


The SLP may, by appropriate exercises, maintain the ability of swallowing. But above all, the respect for simple instructions allows the swallowing to take place under optimum conditions:

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Thumbnail imageYou should avoid foods:

For drinks, avoid:

 

Emergency plan


To face the problem of false routes including the fact that they are getting more and more silent over time, it is necessary to draw up an emergency plan with:

The general principles are:

 

The gastrostomy feeding tube


When eating becomes really problematic and that the ingested amount of food is not sufficient for daily needs and normal growth, it may be decided to use a gastrostomy tube.

Implanted by surgery, it helps to supplement food directly into the stomach while allowing to continue to eat and drink normally.

According to the feedback from the Ataxia Telangiectasia clinic of the Johns Hopkins Hospital in Baltimore, the best results are obtained when the implantation is done when the nutrition and swallowing disorders appear.